Goals of Care in a Medicaid HCBS Program: Variations by Race, Ethnicity, and Dementia
Author Information
Author(s): Robison Julie, Elisha Victor, Kellett Kathy, Baker Kristin, Fortinsky Richard
Primary Institution: University of Connecticut
Hypothesis
How living with dementia and racial and ethnic group membership are associated with meeting self-identified goals of care.
Conclusion
The study found that goal achievement was equally likely for people with and without dementia, as well as across different racial and ethnic groups.
Supporting Evidence
- 90% of respondents felt they had as much input as they wanted in setting their goals.
- 76% of participants felt they had met their goal.
- 49% reported doing better than they had expected.
- 16% reported changing their goal.
- 83% found thinking about goals helpful for future care planning.
- 45% discussed their goals with another health care provider.
- 76% discussed their goals with friends and family.
Takeaway
This study looked at how older adults with and without dementia set and achieve their care goals, and found that everyone had similar success regardless of their background.
Methodology
Structured interviews were conducted in person or virtually with Medicaid HCBS participants 9-10 months after enrollment.
Participant Demographics
Ethnically diverse adults ages 65+ with and without dementia.
Digital Object Identifier (DOI)
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