Environmental Justice: The Tuskegee Legacy Project
2007

Understanding Participation of Minorities in Health Research

Sample size: 1000 publication

Author Information

Author(s): Claudio Luz, Ralph V. Katz, Ruth Browne

Primary Institution: New York University College of Dentistry

Hypothesis

The study aims to determine whether the lack of minority representation in research is due to differences in willingness and concerns about participation.

Conclusion

The study found that while only about 30% of participants were willing to participate in research, blacks were equally willing as whites but had a higher fear of participation.

Supporting Evidence

  • Only about 30% of all surveyed expressed willingness to participate in research studies.
  • Blacks were 1.8 times as likely as whites to fear participating in biomedical research.
  • Blacks were equally willing to participate in research as whites.

Takeaway

The study shows that many people are scared to join health research, especially black people, but they want to help just as much as white people do.

Methodology

The study used the TLP Questionnaire, which included scales to measure willingness to participate and fear of participation in research.

Participant Demographics

The study included black, white, and Hispanic residents from four U.S. cities.

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