Translation, adaptation, and validation of the Care Coordination Instrument for cancer patients
2025

Validating a Questionnaire for Cancer Care Coordination in Germany

Sample size: 192 publication 10 minutes Evidence: high

Author Information

Author(s): Werners Anne, Steckelberg Anke, Strobel Alexandra, Wienke Andreas, Schmidt Heike, Vordermark Dirk, Michl Patrick, Westphalen C. Benedikt, Lühnen Julia

Primary Institution: Martin Luther University Halle-Wittenberg

Hypothesis

The Care Coordination Instrument (CCI) can be effectively translated, adapted, and validated for use in Germany.

Conclusion

The CCI German version is a valid instrument for measuring patients’ perceptions of cancer care coordination.

Supporting Evidence

  • The CCI German version demonstrated high internal consistency with a Cronbach’s alpha of 0.931.
  • Two problematic items were identified and replaced with alternatives that better captured patient experiences.
  • Significant differences in care coordination scores were found based on treatment location and gender.

Takeaway

This study created a questionnaire to help understand how well cancer patients feel their care is coordinated, and it works well in Germany.

Methodology

The study involved translating the CCI, conducting cognitive interviews for adaptation, and validating the instrument with a survey of cancer patients.

Potential Biases

Potential bias due to the familiarity of the interviewer with some participants and the non-random sampling method.

Limitations

The sample was not representative of all cancer patients in Germany, and the study relied on online surveys which may exclude some patients.

Participant Demographics

Participants were primarily female (61.1%), with an average age of 59.3 years, and a high education level.

Statistical Information

P-Value

p=0.002 for gender differences in care coordination scores.

Statistical Significance

p<0.05

Digital Object Identifier (DOI)

10.1186/s12913-024-12123-4

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