Timely community palliative and end-of-life care: a realist synthesis
2021

Timely Community Palliative and End-of-Life Care

Sample size: 345 publication Evidence: moderate

Author Information

Author(s): Petrova Mila, Wong Geoff, Kuhn Isla, Wellwood Ian, Barclay Stephen

Primary Institution: University of Cambridge

Hypothesis

How do primary care and community palliative and end-of-life care programmes generate their outcomes?

Conclusion

Current evidence does not sufficiently support prioritizing temporal criteria for initiating palliative and end-of-life care services, which can lead to significant unintended consequences.

Supporting Evidence

  • Judgements of proximity to death often have accuracy below chance levels.
  • Delays in identifying dying patients can lead to significant distress for both patients and families.
  • Current palliative care policies may not adequately address the complexities of timely identification.

Takeaway

This study looks at how doctors decide when to start palliative care for patients who are dying, and it finds that they often guess wrong about how much time a patient has left.

Methodology

The review used realist synthesis tools to analyze 21 full-text documents and 324 coded abstracts to understand the mechanisms behind palliative care outcomes.

Potential Biases

Potential overconfidence in generalist staff's abilities to manage palliative care may lead to fewer referrals than necessary.

Limitations

The study's theory on timely identification is primarily validated by professionals and lacks extensive testing across a broad range of evidence.

Participant Demographics

The study focuses on adults in primary care and community settings in the UK.

Digital Object Identifier (DOI)

10.1136/bmjspcare-2021-003066

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