Impact of a Child with Congenital Anomalies on Parents Questionnaire: A Psychometric Analysis
Author Information
Author(s): Mazer Petra, Gischler Saskia J, Koot Hans M, Tibboel Dick, van Dijk Monique, Duivenvoorden Hugo J
Primary Institution: Erasmus MC – Sophia Children's Hospital, Erasmus University Medical Center Rotterdam, the Netherlands
Hypothesis
The study aims to validate the ICCAP questionnaire designed to assess the impact of congenital anomalies on parental quality of life.
Conclusion
The ICCAP is a reliable and valid instrument for clinical practice that helps identify parents at risk of early stress.
Supporting Evidence
- The ICCAP questionnaire was validated through confirmatory factor analysis.
- Reliability estimates for the ICCAP ranged from .49 to .92.
- Positive correlations with SF-36 scales confirmed the congruent validity of the ICCAP.
- Changes in parental quality of life were observed over time, indicating sensitivity to change.
- Moderate to high correlations were found between ICCAP domains and child-related background variables.
Takeaway
This study created a questionnaire to help parents of children with serious birth defects understand their feelings and get support.
Methodology
Parents of 100 children with severe congenital anomalies completed the ICCAP questionnaire and the SF-36 at 6 weeks and 6 months after birth.
Limitations
The data assessed at 6 months are based on a relatively small sample size.
Participant Demographics
{"children":{"gender_ratio":"41 females, 59 males","gestational_age":"38 3/7 weeks (range 28 – 42 6/7 weeks)","birth_weight":"3.0 kg (range 0.75 – 4.51 kg)"},"parents":{"age_mothers":"31 years (range 19–45 years)","age_fathers":"33 years (range 23–50 years)","socioeconomic_status":{"low":22,"medium":55,"high":23}}}
Statistical Information
Statistical Significance
p<0.05
Digital Object Identifier (DOI)
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