Caregivers' active role in palliative home care – to encourage or to dissuade? A qualitative descriptive study
2008

Caregivers' Role in Palliative Home Care

Sample size: 7 publication Evidence: moderate

Author Information

Author(s): Anna Weibull, Frede Olesen, Mette Asbjoern Neergaard

Primary Institution: General Practice, Grenaa, Denmark; Research Unit for General Practice, Department of Public Health, University of Aarhus, Denmark

Hypothesis

What is the impact of bereaved spouses' active involvement in medical and physical care on their experience of the palliative course of disease?

Conclusion

The study found that spouses' active involvement in palliative care can have a positive effect on their bereavement experience if certain conditions are met.

Supporting Evidence

  • Caregivers felt satisfaction from their involvement in medical treatment.
  • All caregivers expressed a willingness to be active in care and would do it again.
  • Having professional support was crucial for caregivers' feelings of safety.

Takeaway

When spouses help take care of their loved ones at home, it can make them feel better about their loss, as long as they have support.

Methodology

Qualitative descriptive study based on semi-structured individual interviews.

Potential Biases

Potential bias from using GPs to refer participants, which may have influenced the selection.

Limitations

The study had a small sample size and may not represent all caregivers' experiences.

Participant Demographics

All participants were spouses of terminally ill cancer patients, with an average age of 61.

Digital Object Identifier (DOI)

10.1186/1472-684X-7-15

Want to read the original?

Access the complete publication on the publisher's website

View Original Publication