Patient Involvement in Health Technology Assessment in Europe
Author Information
Author(s): Anke-Peggy Holtorf, Neil Bertelsen, Hannes Jarke, Maria Dutarte, Silvia Scalabrini, Valentina Strammiello
Primary Institution: Health Outcomes Strategies GmbH
Hypothesis
What are the current barriers and potential good practices for patient involvement in health technology assessment (HTA) across Europe?
Conclusion
The study highlights the need for improved guidance, communication, and systematic processes for patient involvement in HTA.
Supporting Evidence
- Patients have insights and information no other stakeholder has.
- Barriers to patient involvement include lack of knowledge and resources.
- Improved transparency and communication are needed for better patient involvement.
- Government mandates could strengthen patient involvement in HTA.
- Patient organizations can help bridge the gap between HTA bodies and patients.
Takeaway
This study shows that patients should be involved in decisions about their health, but many don't know how to participate or feel they lack the necessary information.
Methodology
An online survey was conducted among HTA stakeholders across Europe to gather perspectives on patient involvement.
Potential Biases
The responses may not fully represent all stakeholder perspectives due to the limited number of participants with direct experience in HTA.
Limitations
The survey had a limited core group of stakeholders involved in its development and a relatively small number of respondents with experience in patient involvement.
Participant Demographics
Responses came from HTA practitioners, patient stakeholders, industry representatives, providers, and academics across thirty-two European countries.
Statistical Information
P-Value
0.001
Confidence Interval
95 percent CI [0.437, 0.456]
Statistical Significance
p=0.001
Digital Object Identifier (DOI)
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