DIAGNOSE AND ADIOS: MULTIPERSPECTIVE INSIGHTS ON FORMAL SERVICE USE IN DEMENTIA FAMILY CAREGIVERS
2024

Insights on Formal Service Use in Dementia Family Caregivers

Sample size: 30 publication Evidence: moderate

Author Information

Author(s): Greenfield Annabelle, Mason Hannah, Osso Francesco, Bumbalova Katerina, Bloom Rachel, Falzarano Francesca

Primary Institution: University of Southern California

Hypothesis

What barriers hinder dementia family caregivers from accessing formal services?

Conclusion

Caregivers face significant barriers to accessing formal services, but web-based interventions could improve their experiences.

Supporting Evidence

  • Over 11 million unpaid family caregivers provide care to 6.7 million individuals with Alzheimer's disease and related dementias.
  • Caregivers' utilization rates of available supports remain remarkably low.
  • Three overarching concepts were identified: unmet needs, multi-level barriers, and technology's potential to bridge gaps.

Takeaway

Many family members take care of people with dementia, but they often don't use available help. This study found that using the internet could help them find and use the support they need.

Methodology

Five semi-structured focus groups were conducted with ADRD family caregivers and Dementia Care Community Partners.

Limitations

The study's findings may not be generalizable due to the small sample size and focus group methodology.

Participant Demographics

Participants included 13 ADRD family caregivers and 17 Dementia Care Community Partners.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.0162

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