Development and Validation of the WE-CARE Questionnaire for Parents of Children with Diabetes
Author Information
Author(s): Cappelleri Joseph C, Gerber Robert A, Quattrin Teresa, Deutschmann Rosemarie, Luo Xuemei, Arbuckle Robert, Abetz Linda
Primary Institution: Pfizer Global Research and Development
Hypothesis
Can a new questionnaire effectively measure the well-being and treatment satisfaction of parents with children who have type 1 diabetes?
Conclusion
The WE-CARE questionnaire is a reliable and valid tool for assessing parents' well-being and treatment satisfaction related to their child's diabetes.
Supporting Evidence
- WE-CARE showed excellent internal consistency and test-retest reliability.
- Factor analysis identified four distinct domains related to parents' experiences.
- WE-CARE scores correlated significantly with the mental health component of the SF-36.
- Parents reported higher WE-CARE scores when their child's health was rated as better.
Takeaway
This study created a new questionnaire to help parents of kids with diabetes share how they feel about their child's treatment, and it works well.
Methodology
Parents of children aged 6 to 11 years with type 1 diabetes completed the WE-CARE questionnaire and two other validated questionnaires over two weeks.
Potential Biases
Potential selection or response bias due to lack of data on non-participants.
Limitations
The study had a limited sample size and did not include parents of children under age 6 or over age 11.
Participant Demographics
Approximately 90% of parents were female, with a mean age of 37.1 years, and the majority were white.
Statistical Information
P-Value
p<0.05
Statistical Significance
p<0.05
Digital Object Identifier (DOI)
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