Care for Amish and Mennonite children with cystic fibrosis: a case series
Author Information
Author(s): Jonathan F Henderson, Ran D Anbar
Primary Institution: State University of New York Upstate Medical University
Hypothesis
Can Amish and Mennonite families accept modern medical therapies for cystic fibrosis?
Conclusion
Amish and Mennonite families seeking care for cystic fibrosis may choose to utilize modern medical therapies for their children, with resultant significant improvement in outcome.
Supporting Evidence
- Families accepted preventive therapy and some immunizations for their children with cystic fibrosis.
- Nine patients underwent genotype testing and were found to be homozygous for the ΔF508 CF mutation.
- Five patients participated in clinical research trials.
Takeaway
Some Amish and Mennonite families are open to using modern medicine for cystic fibrosis, which can help their children feel better.
Methodology
Data was collected from 12 Amish and Mennonite patients at the SUNY Upstate Medical University Pediatric Cystic Fibrosis Center, along with three case reports.
Potential Biases
Concerns about the impact of the article on the communities and the potential for group harm.
Limitations
The small size of the Amish and Mennonite communities may lead to identification of patients in case reports.
Participant Demographics
12 Amish and Mennonite patients, with varying acceptance of modern therapies.
Digital Object Identifier (DOI)
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