Quality of Life Questionnaire for Cholangiocarcinoma and Gallbladder Cancer
Author Information
Author(s): Friend E, Yadegarfar G, Byrne C, Johnson C D, Sezer O, Pucciarelli S, Pereira S P, Chie W-C, Banfield A, Ramage J K
Primary Institution: Department of Gastroenterology and Hepatology, BNHFT Hospital Basingstoke
Hypothesis
Is there a need for a disease-specific quality of life questionnaire for patients with cholangiocarcinoma and gallbladder cancer?
Conclusion
The EORTC QLQ-BIL21 is a disease-specific quality of life questionnaire that accurately reflects the quality of life issues faced by patients with cholangiocarcinoma and gallbladder cancer.
Supporting Evidence
- The study identified 47 quality of life issues relevant to cholangiocarcinoma and gallbladder cancer.
- A provisional questionnaire was developed and pre-tested in 52 patients.
- The final questionnaire, EORTC QLQ-BIL21, consists of 21 items addressing specific quality of life concerns.
Takeaway
Doctors created a special questionnaire to help understand how patients with certain types of cancer feel about their lives, and it seems to work well.
Methodology
The study followed EORTC guidelines for module development, including literature review, patient and healthcare professional interviews, and pre-testing of the provisional questionnaire.
Potential Biases
Potential bias due to the limited diversity of the patient sample and the reliance on self-reported data.
Limitations
The study had a limited sample size and was conducted in a specific geographic area, which may affect the generalizability of the findings.
Participant Demographics
Patients were recruited from the UK, Taiwan, and Germany, with a mean age of 64 years, and included both genders.
Digital Object Identifier (DOI)
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