Review of Health-Related Quality of Life Instruments for Young People
Author Information
Author(s): King William, Hockley Lauren, Robinson Tomos, Bate Angela, Ternent Laura
Primary Institution: Health Economics Group, Newcastle University
Hypothesis
This systematic review aims to identify the condition-specific preference-based instruments that have been used with young people and identify how preference values have been obtained for these instruments.
Conclusion
This review illustrates that there does not appear to be clear consensus on how to measure and value HRQoL in young people when using condition-specific instruments.
Supporting Evidence
- Condition-specific HRQoL instruments can be more responsive and sensitive to specific conditions than generic instruments.
- Valuation studies were the most prevalent study design in the review, followed by mapping studies.
- Ordinal methods such as discrete choice experiment and best-worst scaling appear to be preferable for use in this population.
Takeaway
The study looked at different ways to measure how young people feel about their health, but found that there isn't a clear best way to do it yet.
Methodology
A comprehensive search strategy was used to identify condition-specific HRQoL instruments used in young people and the methods used to value these instruments.
Potential Biases
Potential bias may arise from the variation in methodological approaches and the predominance of adult responses in preference elicitation tasks.
Limitations
The review is limited by the lack of clear guidance on how to generate quality adjusted life-years for young people and the ethical challenges in preference elicitation.
Participant Demographics
Young people under 18 years old.
Digital Object Identifier (DOI)
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