Youth and Parent Experiences of Healthcare Transition
Author Information
Author(s): Katherine South, Christine DeForge, Carol Anne Celona, Arlene Smaldone, Maureen George
Primary Institution: Boston Children's Hospital, Boston, USA
Hypothesis
What are the healthcare transition experiences of adolescents and young adults with chronic physical illness and their parents?
Conclusion
The study found that while adolescents and parents experience some aspects of healthcare transition differently, there are common themes that can inform the development of transition preparation interventions.
Supporting Evidence
- AYAs and parents both expressed a need for better preparation for the transition process.
- Common themes included the dynamic nature of transition and the feeling of being in a liminal space.
- Parents often felt left out of their child's care during the transition to adult services.
Takeaway
This study looked at how young people and their parents feel about moving from children's healthcare to adult healthcare, and found that they have both similar and different experiences.
Methodology
Qualitative metasynthesis using Sandelowski and Barroso’s method to analyze 63 studies.
Potential Biases
Potential biases due to the lack of diversity in study populations and the exclusion of non-English studies.
Limitations
The included studies varied in quality, and many did not fully report on essential strategies for enhancing rigor.
Participant Demographics
The studies included 1,106 adolescents and young adults and 397 parents across various chronic illnesses.
Digital Object Identifier (DOI)
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