Prevalence of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) in three regions of England: a repeated cross-sectional study in primary care
2011

Prevalence of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in England

Sample size: 143000 publication 10 minutes Evidence: moderate

Author Information

Author(s): Luis Nacul, Eliana M. Lacerda, Derek Pheby, Peter Campion, Mariam Molokhia, Shagufta Fayyaz, Jose C. D. Leite, Fiona Poland, Amanda Howe, Maria L. Drachler

Primary Institution: London School of Hygiene and Tropical Medicine

Hypothesis

What is the prevalence and incidence of ME/CFS in three regions of England?

Conclusion

ME/CFS is not uncommon in England and represents a significant burden to patients and society.

Supporting Evidence

  • The estimated minimum prevalence rate of ME/CFS was 0.2%.
  • The overall estimated minimal yearly incidence was 0.015%.
  • Prevalence rates varied by region, with London having the highest rates.
  • Most cases conformed to the CDC-1994 definition.

Takeaway

This study found that many people in England suffer from a condition called ME/CFS, which makes them very tired and affects their daily lives.

Methodology

The study involved two cross-sectional surveys of 143,000 individuals aged 18 to 64 years from 29 general practices in three regions, using electronic searches and GP questioning to identify cases.

Potential Biases

Potential under-diagnosis of ME/CFS cases due to lack of recognition by health professionals.

Limitations

The study may not represent the entire UK population due to selection bias and the exclusion of non-consulting patients.

Participant Demographics

Participants were aged 18 to 64, with a majority being women and a diverse ethnic background in London.

Statistical Information

Confidence Interval

95%

Digital Object Identifier (DOI)

10.1186/1741-7015-9-91

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