Communication Support for People with ALS
Author Information
Author(s): David Beukelman, Susan Fager, Amy Nordness
Primary Institution: Madonna Rehabilitation Hospital and University of Nebraska
Hypothesis
The timing of referral for augmentative and alternative communication (AAC) assessment and intervention is crucial for individuals with ALS as their speech deteriorates.
Conclusion
Timely referral for AAC intervention significantly improves communication support for individuals with ALS.
Supporting Evidence
- 80 to 95% of people with ALS cannot meet their communication needs using natural speech.
- 88% of individuals received timely AAC assessments when referred based on speaking rate.
- 96% of people with ALS accepted and used AAC technology when assessed in a timely manner.
Takeaway
People with ALS often have trouble speaking as their disease gets worse, so it's important to get them help with communication before they can't talk at all.
Methodology
The study reviewed existing research on communication supports for people with ALS and analyzed data from AAC centers.
Potential Biases
Potential bias in referral practices by healthcare providers may affect timely AAC assessments.
Limitations
The study may not account for all individual variations in ALS progression and communication needs.
Participant Demographics
The study included nearly 300 individuals with ALS, with a higher percentage of females receiving late AAC assessments.
Digital Object Identifier (DOI)
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