Understanding the Benefits of Alzheimer's Treatments
Author Information
Author(s): Zanjani Faika, McIntyre Madeline, Gendron Tracey, van den Broek-Altenburg Eline
Primary Institution: Virginia Commonwealth University
Hypothesis
Which non-QALY benefits of Alzheimer’s Disease and Related Dementia treatments are most important?
Conclusion
Important elements like hope and option value are often overlooked in cost-effectiveness estimates for Alzheimer's treatments.
Supporting Evidence
- Participants lacked knowledge about Alzheimer's and its treatments.
- Cost and side effects were important considerations for treatment.
- Participants felt the healthcare system was confusing and uncoordinated.
- Emotional impacts of Alzheimer's included grief, sadness, and hopelessness.
Takeaway
This study looked at what people think is important about Alzheimer's treatments, and found that feelings like hope are often ignored when deciding if a treatment is worth it.
Methodology
Twelve semi-structured focus groups were conducted with at-risk individuals and caregivers, analyzed thematically.
Potential Biases
Participants may have biases due to their personal experiences with the healthcare system.
Limitations
Participants expressed a lack of trust in the healthcare system and faced challenges in accessing care.
Participant Demographics
60% at-risk individuals and 40% caregivers.
Digital Object Identifier (DOI)
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