Living with Young Onset Dementia in Residential Care
Author Information
Author(s): Linda Johansson, Therése Bielsten, Jimmy Lindberg, Deborah Finkel
Primary Institution: Jönköping University
Hypothesis
The study aimed to describe characteristics of residents with Young Onset Dementia living in residential care and the quality of care.
Conclusion
The study indicates that person-centered care is central in residential care for persons with Young Onset Dementia in Sweden.
Supporting Evidence
- Approximately 10,000 people in Sweden have Young Onset Dementia.
- The average age of admittance was 61.3 years.
- On average, six medications were used by participants.
- A medication review had been conducted within the past 12 months for 84% of the participants.
- Care received in accordance with one’s life story was common among 71% of participants.
- Individual environmental adaptations were common among 64% of participants.
- Only 22% of participants had advanced care plans.
- Restraints were present in 44% of the persons with Young Onset Dementia.
Takeaway
This study looked at how young people with dementia are cared for in homes, finding that while some care is good, many don't have plans for their future care.
Methodology
National quality registry data from the Swedish Dementia Register (SveDem) between 2012 and 2022 were used.
Limitations
It is not possible to draw general conclusions from this small study.
Participant Demographics
The average age of admittance was 61.3 years, with no significant differences found between women and men.
Digital Object Identifier (DOI)
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