Parents' Views on Health Care Transition for Adopted Children with HIV
Author Information
Author(s): Faith Glover, Rosemary Olivero, Cynthia Fair
Primary Institution: Elon University
Hypothesis
What are the perspectives of parents on health care transitions for their internationally adopted children living with HIV?
Conclusion
Physicians should consider trauma-informed care and support health management independence for both children and parents during the transition to adult care.
Supporting Evidence
- Parents expressed anxiety about their child's transition to adult care due to lack of planning.
- Most parents felt unprepared for the transition process and had not discussed it with their child's provider.
- Parents emphasized the importance of trauma-informed care for their children during the transition.
Takeaway
This study talks about how parents feel about moving their adopted children with HIV from kids' doctors to adult doctors, and how they worry about their kids' readiness and the care they'll get.
Methodology
Qualitative study using semi-structured phone interviews with parents of internationally adopted children living with HIV.
Potential Biases
Selection bias may exist as families with IACH are likely higher resourced than others.
Limitations
The sample was relatively uniform, with all children on ART and well connected to care, limiting generalizability.
Participant Demographics
Most participants were white, female, with a median age of 45.3 years.
Digital Object Identifier (DOI)
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