SIBLING-TO-SIBLING DEMENTIA CARE: UNDERSTANDING MOTIVATIONS, CHALLENGES, AND EXPERIENCES
2024

Sibling Care for Dementia

Sample size: 25 publication

Author Information

Author(s): Savla Jyoti, Roberto Karen

Primary Institution: Virginia Tech

Hypothesis

What motivates siblings to care for their siblings living with dementia and what challenges do they face?

Conclusion

Sibling caregivers face various challenges but also find motivations in their shared experiences and support from family.

Supporting Evidence

  • Caregiving roles are influenced by shared life experiences and availability.
  • Support from family members reduces caregiver burden.
  • Caregiving experiences vary based on birth order, race, and socioeconomic status.

Takeaway

This study looks at how brothers and sisters help each other when one has dementia, showing that family support makes caregiving easier.

Methodology

Mixed-methods analysis of interviews with sibling caregivers.

Limitations

Limited exploration of instrumental help and complexities of caregiving roles.

Participant Demographics

12 sisters caring for sisters, 10 sisters caring for brothers, and 2 brothers caring for brothers; average age 68.03 years; 48% African American; 52% co-residing.

Digital Object Identifier (DOI)

10.1093/geroni/igae098.1318

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